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Grafton girl represents peers who suffer from muscular diseases
When 13-year-old Kirsten Ferguson of Grafton was contacted by the Muscular Dystrophy Association (MDA) with a request to serve as the organization’s “Shambassador,” she did not hesitate to say yes. It is her goal to give back to the organization what has been given to her so she could attend MDA camp and to raise enough money so other children like her can also attend.
At only 20 days old, Kirsten was adopted by Jeff and Chris Ferguson of Grafton. Her parents were aware their new daughter had special needs and would require extra tender, loving care. At her one-month checkup, her pediatrician determined Kirsten had low muscle tone. After months and years of testing, she was diagnosed with congenital myasthenia gravis, a neuromuscular disease leading to fluctuating muscle weakness and fatigue. According to her mother, Chris, two years ago, her doctors dismissed the diagnosis, but have not been able to give her daughter’s disorder a specific name. The disorder affects her speech and her coordination, and makes it difficult for her to run and keep up with other teens her age.
Because it is a muscular disorder, she falls within the guidelines to receive help from MDA.
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